Inclusive education is an attitude of acceptance of difference, not a classroom placement. It is a value of diversity that extends to ALL children.

INCLUSIVE CHILD CARE

The Americans with Disabilities Act (ADA) and Section 504 if the Vocational Rehabilitation Act prohibit discrimination by child care and after-school care providers against children with special needs. Many child care providers, after-school care providers and families are unaware of the provisions of these laws or how to effectively include children with special needs.

What is the NJ Inclusive Child Care
Project?

The Map to Inclusive Child Care Training & TA Project is a project spearheaded by SPAN (Statewide Parent Advocacy Network) and funded by the New Jersey Department of Human Services. The goals of this project are:

  Increase the quality of early care and education for children with special needs

  Increase the number of childcare providers that offer inclusive child care

  Increase awareness among families, childcare providers, and resource and referral counselors of the Unified Child Care Agencies of the services available for children with special needs.

  Improve the delivery of services to children with special needs through collaboration among the providers of childcare services and special needs services.

What kinds of programs does the 
NJ Inclusive Child Care Project offer?

The NJ Inclusive Child Care Project provides:

Free information (in English and Spanish) about laws affecting inclusion and child care (early childhood and after-school programs).

Free information about available services and resources in New Jersey for children with special needs.

Free workshops (in English and Spanish) on inclusion awareness as well as 'how to' workshops for parents and service providers conducted by nationally acclaimed early childhood experts.

Free telephone technical assistance regarding early childhood and after school inclusion using our toll-free hotline and/or the Resource and Referral staff of the county-based Unified Child Care Agencies (see list)

Free on-site technical assistance and support to child care providers and after school programs on including children with special needs.

back to top

TELL ME MORE ABOUT THE WORKSHOPS 
THE NJ INCLUSIVE CHILD CARE PROJECT OFFERS

The project offers a variety of free workshops for parents and professionals (in English and Spanish):

Inclusion: It’s the Law and It’s Doable
Provides the guiding principles of inclusion, information about the laws affecting it, how children are more alike than different and where to turn for assistance when necessary.

Making Inclusion Happen
Helps you understand how to teach to individual abilities and adapt activities to meet the needs of all children.

Challenging Behaviors
Concentrates on how to use positive techniques to understand challenging behaviors and establishing an environment that encourages desirable behavior in children.

Observing and Recording Behavior
Reviews typical child development milestones, observation strategies and how to share this information with parents.

We also offer...

Free on-site technical assistance and support to child care providers, including family child care providers and after-school programs on including children with special needs. We can help you  prepare to include children (or a specific child) with special needs. We can also help you effectively serve children (or a specific child) with special needs.

For more information about Workshops and On-site Technical Assistance, contact Denise Bouyer, Project Director at 1-800-654-7726, ext. 108.

back to top

TELL ME MORE ABOUT AVAILABLE RESOURCES 
& TECHNICAL ASSISTANCE

In addition to the training and technical assistance available through SPAN's NJ Inclusive Child Care Project, there are other resources to support the inclusion in special needs child care.

RESOURCE LIST:

NJ Resource & Referral Agencies
Provide information about child care programs and services available at a local level.
1-800-332-9CARE
Special Child Health Services-Case Management
Case management for children birth-21 with special health care needs; help to access services for medical/dental, developmental, educational, social/economic, and rehabilitative needs at the local & state level.
Contact: Pauline Lisciotto 
(609)777-7778
Early Intervention/NJ Dept. of Health & Senior Services:
Contact:
Terry L. Harrison (609)777-7734 
Fax: (609)292-3580
New Jersey State Dept. of Education Office of Special Education Programs
Preschool Coordinator:
Barbara Tkach 
(609) 984-4950
Learning Resource Centers (LRC) provide workshops, instructional materials, consultation and technical assistance to parents and professionals for a $2 annual membership fee.
LRC North: Paquita Roberts 
(973) 414-4491
LRC Central: Sue Leonard
(732) 441-0460
LRC South: Claire Punda
(856) 582-7000, ext. 155
NJ's Special Needs Child Care Project
Department of Human Services 
(609) 292-8444
NJ Head Start Association
Contact: Mary Sandhorst 
(609) 771-8401  Fax:(609) 771-8405
Quality Improvement Center 
for Disabilities
New York University School of Education
726 Broadway, 5th Floor
New York, NY 10003-9580
Contact: Rose Annussek
(800) 533-1498  
Fax: (212) 995-4562
Boggs Center-University Center of Excellence.
Contact: 
Karen Melzer
(732) 235-9326 
Fax: (732) 235-9330
The UAP provides training, information and support for people with disabilities and supporting agencies
Family Support Center
(800) FSC-NJ10
Administration for Children & Families Child Care Bureau: Inclusion Technical Assistance
Region II, Federal Bldg., Rm. 1243
Federal Plaza
New York, NJ 10278
Contact: Souvonia Taylor
(212) 264-2667
Child Care Law Center
22 2nd St., 5th Floor
San Francisco, CA 94105
(415) 495-5498
United Cerebral Palsy Association of NJ
Known as an excellent resource in solving problems relating to education, employment, assistive technology, advocacy, housing, the ADA, and other concerns for people with all types of disabilities. 
1-888-322-1918
TTY: (609) 392-7044
School-Aged Child Care Coalition

http://www.njsacc.org 

Every County in New Jersey has a local resource and referral agency which functions as a central clearinghouse for information about child care programs and services available at a local level.
Call 1-800-332-9CARE

back to top

CHILD CARE AND CHILDREN WITH SPECIAL NEEDS:

ALMOST EVERYTHING YOU WANTED TO KNOW BUT WERE AFRAID TO ASK!

1.       Are child care centers covered by the Americans with Disabilities Act (ADA)?

Yes.  Almost all privately-run child care centers (including small, home-based centers, even those that are not licensed by the sate) and all child care services provided by government agencies (like Head Start, summer programs, and extended school day programs) must comply with the ADA.  Even private child care centers that are operated by a religious organization do not have to comply with ADA.  Even those centers may have to comply if they have agreed to comply through contract with a federal, state, regional, or local government agency.

2.  What are the basic requirements of the ADA for child care centers?

Child care providers may not discriminate against persons with disabilities.  They must provide children and parents with disabilities with an equal opportunity to participate in their programs and services. 

·         Centers and providers cannot exclude children with disabilities from their programs unless their presence would pose a direct threat to the health or safety of others or require a fundamental alteration of their program. 

·         Centers and providers must make reasonable modifications to their policies and practices to include children, parents, and guardians with disabilities in their programs unless doing so would be a fundamental alteration of their program. 

·         Centers and providers must provide appropriate auxiliary aids and services needed for effective communication with children or adults with disabilities, unless doing so would be an undue burden (significant difficulty or expense, relative to the childcare provider’s resources or the resources of the “parent” company.)

·         Centers and providers must make their facilities accessible to people with disabilities.  Existing facilities must remove any readily achievable barriers, while newly constructed facilities and any altered portions of existing facilities must be fully accessible.  If existing barriers can be easily removed without much difficulty or expense, childcare providers must remove those barriers now even if there are no children or adults with disabilities using the program.  Installing offset hinges to widen a door opening, installing grab bars in toilet stalls, or rearranging tables, chairs or other furniture are all examples of readily achievable barrier removal.  Centers run by government agencies must insure that their programs are accessible unless making changes would impose an undue burden: this will sometimes include changes to facilities. 

In order to demonstrate “reasonable efforts,” childcare providers must attempt to access available resources outside of their programs.  For example, resources to support the inclusion of a child with a disability may be provided by the New Jersey Early Intervention System-New Jersey Department of Health and Senior Services or by a local school district through its special education program.  Other resources may be available through the Special Needs Child Care project of the New Jersey State Department of Human Services and the local county Unified Child Care Resource and Referral agency.  These agencies offer free information and assistance to childcare providers.

3.  How do I decide whether my center can meet the needs of a child with a disability?

Child care providers must make individualized assessments about whether they can meet the particular needs of each child with a disability who seeks services from their program, without fundamentally altering their program.  In each case, the provider must talk with the parents or guardians and other professionals who work with the child.  Providers are often surprised at how simple it is to include children with special needs in their programs.  Child care providers are not required to accept children who would pose a direct threat or whose presence or necessary care would fundamentally alter the nature of their program.

4.    What are some reasons that are not acceptable for rejecting children with disabilities? 

·         Higher insurance rates are not a valid reason for excluding children with disabilities.  If any extra cost is incurred, it should be treated as overhead and divided equally among all paying families.

·         The need of a child with a disability for individualized attention is not a valid reason for excluding that child, unless the extent of the child’s need for individualized attention would fundamentally alter the child care program or the cost of providing the individualized attention would be an undue burden on the program. 

·         The need for a child with a disability to bring a service animals a seeing eye dog, to the center, is not a valid reason for excluding that child, even if the center has a “no pets” policy.  Service animals are not “pets”. 

·          The need for a child with a disability to receive medication while at the childcare program is not a valid reason for excluding that child.  As long as reasonable care is used in following the written instructions about administering medication, centers are generally not liable for any resulting problems. 

·         The fact that a child has allergies, even severe, life-threatening allergies to bee stings or certain foods, is not a valid reason for excluding that child.  Childcare providers need to be prepared to take appropriate steps in the event of an allergic reaction, such as administering a medicine called “epinephrine” that will be provided in advance by the child’s parents or guardians.  New Jersey State law has recently changed to allow non-medical personnel to administer these “epi-pens.”

·         Delayed speech or developmental delays are not valid reasons for rejecting children with disabilities.  Under most circumstances, children with disabilities must be placed in age-appropriate classrooms.

·         Mobility impairments are not valid reasons for rejecting children with disabilities.  Some children with mobility impairments may need assistance in taking off and putting on leg or foot braces during the day.  As long as doing so would not be so time-consuming that other children would have to be left unattended, or so complicated that it can only be done by licensed health care professionals, it would be a reasonable modification to provide such assistance.

·         The need for toileting is not a valid reason for rejecting children with disabilities, even if the provider has a general rule about excluding children over a certain age unless they are toilet-trained.  Under state regulations, the childcare provider must have an approved toileting are if toileting services are provided for any child, regardless of age.  This is not grounds for refusing to accept a child who requires these services.  Of course, universal precautions, such as wearing latex gloves, should be used whenever caregivers come into contact with children’s blood or bodily fluids, such as when they are providing toileting services.

5.        What are some reasons that are acceptable for not accepting children with disabilities?

·         Children who pose a direct threat – a substantial risk of serious harm to the health and safety of others – do not have to be admitted into a program.  This determination may not be made on generalizations or stereotypes; it must be based on an individualized assessment that considers the particular activity and the actual abilities and disabilities of the child. 

·         Child care providers may ask all applicants whether a child has any diseases that are communicable through the types of incidental contact expected to occur in child care settings or specific conditions, like active infectious tuberculosis, that in fact pose a direct threat.  Providers may not inquire about conditions such as AIDS or HIV infections that have not been demonstrated to pose a direct threat.

6.        What are some reasons that are acceptable for removing a child with disabilities from a child care program after he or she has been admitted?

·         If a childcare provider has made reasonable efforts to meet the needs of a child with disabilities already in their program, but the child’s needs cannot be met, or the child continues to pose a direct threat to the health or safety of others, the child may be removed from the program. However, this decision must be made on an individual bases

7.        How does a childcare provider cover the costs of providing special services to a child with a disability?

Childcare providers may NOT charge parents of children with special needs additional fees to provide services required by the ADA.  For example, if a center is asked to do simple procedures that are required by the ADA, like finger-prick blood glucose tests for children with diabetes, it cannot charge the child’s parents extra.  (Of course, the parents must provide all appropriate testing equipment, training and special food necessary for the child):  Instead, the provider must spread the cost across all families participating in the program.  If the childcare provider is providing services beyond those required by ADA, like hiring licensed medical personnel to conduct complicated medical procedures, it may charge the child’s family. 

To help offset the cost of actions or services that are required by the ADA, such as architectural barrier removal, providing sign language interpreters, or purchasing adaptive equipment, some tax credits and deductions maybe available.  Contact the ADA Information Line, 800-514-0301, for more details.  Contact the Special Needs Child Care project at 609-984-5321 for more information or for the Resource and Referral agency nearest you.     

back to top

COMPREHENSIVE RESOURCE GUIDE

New Jersey Inclusive Child Care Project
Finding Our Way Together

Resources to support the inclusion of children with special needs in child care centers, family child care, and after school care

The NJ Inclusive Child Care
Project is funded by the New Jersey Department of Human Services, Division of Family Development.

For more information, contact Denise Bouyer, Project Director,
at (973) 642-8100 x 108, or send e-mail to:
dbouyer@spannj.org

back to top

Including Children with Special Needs in Typical Early Childhood Settings 

 Did you know that if your child is eligible for preschool special education, s/he is potentially eligible to receive these services in ‘the least restrictive environment’, or, in other words, a typical early childhood setting such as your neighborhood preschool, a child care center, or an Abbott contracted center, as long as the program is licensed or approved by a governmental agency and is non-sectarian? [N.J.A.C. 6A: 14-4.3 (c)] 

According to the Individuals with Disabilities Education Act (IDEA), every child who is eligible for special education services is entitled to a free appropriate public education in the least restrictive environment to the maximum extent appropriate. The New Jersey Administrative Code (6A:14-4.3 (a)] states that “A full continuum of alternative placements shall be available to meet the needs of students with disabilities (3-21) for special education and related services.” This means that every child, regardless of his/her disability, is entitled to an opportunity to be educated with children who are not disabled and to be provided with the supports and services necessary to implement the IEP to the maximum extent appropriate. [N.J.A.C. 6A:14-4.3 (c)3] “Special classes, separate schooling, or other removal of a student with a disability from the student’s regular class occurs only when the nature or severity of the educational disability is such that education in the student’s regular class with the use of appropriate supplementary aids and services cannot be achieved satisfactorily.”[N.J.A.C. 6A:14-4.2 (a) 2] 

So, when you sit down with the Child Study Team to discuss your child’s educational needs, you should begin by discussing what services your child needs, and then where those services would best be provided, looking at a continuum of options from least restrictive to more restrictive, depending on your child’s needs. 

If my child is receiving preschool special education in a typical early childhood program, who is responsible for paying the tuition? 

If your child is eligible for preschool special education and you and the district agree that a typical early childhood program is the most appropriate placement for your child to receive his special education services, the district is responsible for paying the tuition for the time that special services are being provided. This means that if your child is receiving the minimum 10 hours of preschool special education required by New Jersey State law, [N.J.A.C. 6A 14-4.1 (d)] the district is responsible for paying for 10 hours of tuition. For example, if your child attends a program for 40 hours per week and receives 10 hours of special education services at the program, the district is responsible for paying 25% of your tuition.  The district is also responsible for paying for any special education services that are written in your child’s IEP such as supplementary supports and services, speech and language therapy, occupational therapy, physical therapy, and/or a special educator.  Remember that when a child with a disability is served in a typical early childhood program, it is optimum for the child care provider to be a partner in the IEP implementation.  Research has shown that most intervention occurs in between therapy sessions.  Of course, it is ultimately the district’s responsibility to ensure that the IEP is being properly implemented; however, collaboration is essential. 

What if my child needs a shadow/aide in order to be successful in a typical early childhood setting?  Who is responsible for providing that support? 

If you and the Child Study Team agree that your child needs a shadow/aide in order to implement his/her IEP in a typical early childhood setting, these supplementary aids and services must be written into the IEP. [N.J.A.C. 6A:14-4.3(a)1] The district is responsible for anything written into the IEP. Remember that inclusion is most successful when the proper supports are provided.  These supports may also include in-service training and ongoing collaboration between child study team members/related service providers and child care staff.  These supports should be written into the IEP. 

What if I want my child to attend the preschool disabilities program offered by my district, but I would like my child to attend a program with typical peers the other half of the day; is there any district support available to the typical program or have I exhausted all of my district resources by sending her to the preschool disabilities program? 

The questions you need to ask are:

·         What goals and objectives in her IEP reflect her need for socialization with typical peers? And,

·         Does she have an opportunity to interact with non-disabled peers over the course of her day in the preschool disabilities program in order to achieve these goals? 

If the answer to the second question is that she does not have an opportunity to interact with non-disabled peers, then this would be an area for discussion with the Child Study Team. You might suggest that these goals be addressed at the typical program she attends in the afternoon for an agreed upon amount of time each week in order to achieve her IEP goals.  Once again, if you and the child study team agree with this arrangement, it would be beneficial to include a component in the IEP that addresses collaboration between child study team members and the typical child care staff so that the social-emotional goals can be adequately addressed in the typical setting. 

I agree with my district about the related services they are offering my child, but I am in disagreement with them about placement.  Can my child still receive related services while we resolve the placement issue? 

Yes. According to the Individuals with Disabilities Education Act [Sect. 300.505 (d)], a parent may accept a portion of the IEP while rejecting other parts.  It is suggested that you specify your acceptance of  ‘related services only’ on the signature page of the IEP. 

I would like to have my child receive his special education services in a typical setting.  How do I go about finding a typical preschool that will accommodate my child? 

N.J.A.C. 6A:14-4.2 (a) states: “Students with disabilities shall be educated in the least restrictive environment.  Each district board of education shall ensure that: 1. To the maximum extent appropriate, a student with a disability is educated with children who are not disabled.” This means that it is the district’s responsibility to find a program in the least restrictive environment. However, you can be a partner in this process.  If your child is already attending a typical early childhood program that you feel is successfully including your child, you can suggest that the district visit the program and make it part of the evaluation. N.J.A.C. 6A:14-3.4  3(d) (2)i & ii  states:  “Each evaluation of the student shall include functional assessment of academic performance and where appropriate, behavior.  Each of the following components shall be completed by at least one evaluator:  I. A minimum of one structured observation by one evaluator in other than a testing session; (1) In the case of a student who is suspected of having a specific learning disability, one evaluator shall observe the student’s academic performance in the regular classroom.” If the district is in agreement that this would be an appropriate placement for your child, the district could establish a relationship with that program.  However, the district is not obligated to select the center you have chosen as long as they can provide an acceptable alternative.  If the center you have selected is outside your home district, it is the district’s choice whether or not to use it.  There are districts in New Jersey that have relationships with early childhood programs outside their district, but it is up to each district to make that decision.  However, if the district is unable to find an adequate program within their district, they may need to look outside their district for an appropriate inclusive placement. 

Remember that regardless of whether your child receives special education services in a typical setting, child care providers are required by law (ADA) to make reasonable accommodations to include children with disabilities in their programs  unless doing so would:

·         pose a direct threat to the health or safety of others,

·         result in an undue burden, or

·         fundamentally alter their program

What if a center is willing to accept my child, but says that my tuition will be higher than the other parents because the center will require additional staff in order to accommodate my child?  

If your child is receiving his special education services at this center, your district is responsible for providing any supplemental aids and services necessary to successfully include your child in the program during the time that the IEP is being implemented. 

 If the child care provider is incurring additional costs in order to accommodate your child beyond the minimum 10 hours of special education, they may not charge you additional fees. According to the Americans with Disabilities Act (ADA), a child care provider must spread any additional costs incurred across the entire parent body.  This means that, for example, if it costs the center $100 more per week to include your child and there are 100 children in the center, every parent should be asked to pay $1 more per week.  It is the child care provider’s responsibility, according to the ADA, to make reasonable accommodations that won’t cause an undue burden to them.  While the ADA is vague in its definition of ‘undue burden’, the U.S. Department of Justice would look at the overall resources of the organization in determining what is an ‘undue burden’.  This means that while a family child care provider would probably not be expected to make costly accommodations such as installing an elevator, a university affiliated center or national child care chain or YMCA may be required to do so, depending upon their resources.  The Justice Department would look at the resources of the umbrella organization in making their determination. Furthermore, according to the ADA, even if a child care provider does not currently serve children with disabilities, they should be in the process of preparing their facilities for children with disabilities by removing any existing barriers that are easily removed, such as installing offset hinges to doors or grab bars in bathrooms. 

My child is not yet toilet trained and the provider I am interested in only accepts children who are toilet trained.  Is it legitimate for them to exclude my child because of this? 

The need for toileting is not a valid reason for rejecting children with disabilities, even if the provider has a general rule about excluding children over a certain age unless they are toilet trained.  Under state regulations, the child care provider must have an approved toileting area if toileting services are provided for any child, regardless of age. 

A few statistics to keep in mind…

There are approximately 3,700 licensed child care centers currently serving roughly 195,000 children in New Jersey. There are approximately 8,000 preschool children who are eligible for preschool special education in New Jersey.  If every center were to enroll two children with a disability in their program, every preschool aged child eligible for special education could be served with his/her typically developing peers.  This means that children with special needs would have typical role models for all areas of development.  But more importantly, they would be part of their communities from an early age.  Research has shown that children who are properly supported in typical early childhood settings develop socially, behaviorally and developmentally as well, if not better than, their counterparts in segregated settings.  Research has also demonstrated that the more children spend time being educated in segregated settings, the greater the likelihood that they will be in segregated settings throughout their lives into adulthood.  

Now is the time to make a difference….

Original artwork by Jaclyn Raia

HOME